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Websites
There are many helpful websites covering the experience of living with dementia, current research, and other dementia-related issues. These are just some of my favorites that I hope you'll explore!
Written by People Living with Dementia
William Yeates shares his approach to living well with dementia, based on his own journey with Young Onset Alzheimer's which began in 2019. On his website, he shares his personal experience and advocacy efforts as well as offering guidance to others through his tree of positivity. You can review the tree he created for himself as well as creating your own tree that represents your goals for living well day to day.
Pete Middleton writes about his journey of living with Alzheimer's since 2019. Some blog entries share information on dementia-related issues, some share his creative poems and stories, and many share his experience of coping with the challenges dementia brings to daily life.
Videos & Podcasts for People Living with Brain Changes
Bonnie, who has vascular dementia and white matter disease, shares how she found hope and support after her diagnosis. She talks about how she shared her diagnosis with family and friends. She also explains how online support groups give her motivation and tips for overcoming obstacles in daily life. This is one of the many videos of people telling their stories of how they have continued living after dementia diagnosis on Dementia Action Alliance's "This Dementia Life" page.
Have you noticed some changes in your or your loved one's behaviors or thinking abilities? Are you wondering whether or not it's worth discussing dementia with your medical provider? This half hour podcast, from Banner Health's "Dementia Untangled" podcast series, explains the different levels of diagnostic testing for dementia in a very straight-forward way. It also dispels myths from the past and talks about how getting a specific diagnosis can help you in coping with symptoms and planning for future care.
Courageous Conversations
with Teepa Snow's Positive Approach® to Care
Many of these videos share personal stories of living with dementia, told by the people who have it. Some also tackle ethical or sensitive issues related to dementia such as end of life decisions, different impacts on various social or ethnic cultures, and research advocacy concerns.
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